PRATIWI, EMALIA (2024) PERLINDUNGAN HUKUM TERHADAP PASIEN YANG MENGALAMI SINDROM STONEMAN DI INDONESIA. Undergraduate thesis, universitas 17 agustus 1945 surabaya.
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Abstract
Dalam prakteknya pelayanan kesehatan mengenal berbagai macam masalah kesehatan dari masyarakat salah satunya terkait penyakit langka. Dalam penelitian ini akan dibahas mengenai masalah kesehatan tersebut adalah Sindrom Stone Man atau Fibrodysplasia Ossificans Progresifiva (FOP), dikenal sebagai sindrom manusia batu, adalah kelainan jaringan ikat dan kelainan genetik yang sangat langka serta melumpuhkan, ditandai dengan kelainan bawaan akibat mutasi yang terjadi pada gen ACVR1, sebuah gen yang mengontrol pertumbuhan sel dan proliferasi pada otot dan jaringan penghubung. Kebanyakan penyakit ini terjadi pada anak-anak terutama anak laki-laki, yang harus mendapatkan perlindungan hukum terhadap pasien yang mengalami Sindrom Stoneman menurut UndangUndang Kesehatan dan sanksi yang diberikan terhadap orang yang melakukan diskriminasi pasien yang mengalami sindrom stoneman. Penelitian yang digunakan dalam penelitian ini ialah penelitian hukum normatif sehingga dapat dihasilkan pelindungan hukum terkait penyakit langka Sindrom Stoneman menggunakan Undang-Undang Nomor 17 Tahun 2023 dan hukuman yang diberikan terhadap orang yang melakukan diskriminasi terhadap pasien Sindrom Stoneman ini dengan menggunakan penyelesaian hukum perdata, penyelesaian hukum pidana, serta penyelesaian konsumen jasa pelayanan kesehatan sesuai Peraturan PerundangUndangan yang berlaku di Indonesia. Pentingnya perlindungan dan penegakan hukum tidak lain untuk memastikan perlindungan hukum dan yang paling dapat melindungi kepentingan korban secara langsung adalah pembayaran ganti rugi dan hukuman pidana penjara sesuai Undang-Undang yang telah ditetapkan.
Item Type: | Thesis (Undergraduate) |
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Uncontrolled Keywords: | Sindrom Stoneman, Perlindung |
Subjects: | K Law > K Law (General) |
Divisions: | Fakultas Hukum |
Depositing User: | 145539 dian andi lesmana |
Date Deposited: | 29 Jul 2024 07:00 |
Last Modified: | 29 Jul 2024 07:00 |
URI: | http://repository.untag-sby.ac.id/id/eprint/32543 |
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