Intani, Malinda (2026) Pengalaman Komunikasi Remaja Perempuan Penderita Systemic Lupus Erythematosus ( SLE) di Surabaya dalam Memaknai Identitas Diri. (Communication Experiences of Female Adolescents with Systemic Lupus Erythematosus (SLE) in Surabaya in Understanding Self-Identity.). Undergraduate thesis, Universitas 17 Agustus 1945 Surabaya.
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Abstract
Penelitian ini membahas pengalaman komunikasi remaja perempuan penderita Systemic Lupus Erythematosus (SLE) di Surabaya dalam memaknai identitas diri setelah didiagnosis penyakit autoimun kronis yang memengaruhi kondisi fisik, psikologis, dan sosial mereka. Penelitian menggunakan pendekatan kualitatif dengan metode fenomenologi sosial Alfred Schutz untuk memahami pengalaman hidup informan secara mendalam, sementara analisis data dilakukan menggunakan teori interaksi simbolik George Herbert Mead melalui konsep mind, self, dan society. Informan penelitian terdiri dari dua perempuan penderita SLE berusia 21 dan 22 tahun yang berdomisili di Surabaya, dengan data yang diperoleh melalui wawancara mendalam, observasi, dan dokumentasi. Hasil penelitian menunjukkan bahwa diagnosis lupus mengubah cara informan memandang diri, tubuh, aktivitas sehari-hari, serta masa depan mereka. Kondisi tubuh yang mudah lelah, keterbatasan terhadap paparan sinar matahari, rutinitas pengobatan yang harus dijalani, serta kemungkinan terjadinya flare mengharuskan informan melakukan berbagai penyesuaian dalam kehidupan sehari-hari. Dalam proses tersebut, dukungan dari keluarga, teman, dan orang terdekat berperan penting dalam membantu penerimaan diri dan pembentukan identitas yang lebih positif. Sebaliknya, komentar mengenai perubahan fisik, stigma akibat kurangnya pemahaman masyarakat tentang lupus, serta perlakuan yang terlalu membatasi aktivitas mereka sering kali menimbulkan perasaan tidak nyaman dan menurunkan kepercayaan diri. Informan juga menunjukkan kecenderungan untuk mengungkapkan kondisi kesehatannya secara selektif berdasarkan tingkat kedekatan hubungan dan kebutuhan komunikasi yang dihadapi. Penelitian ini menyimpulkan bahwa identitas diri perempuan ODAPUS terbentuk melalui proses refleksi diri dan interaksi sosial yang berlangsung secara dinamis dan bertahap, di mana lupus menjadi bagian dari pengalaman hidup yang membentuk cara mereka memaknai diri, namun tidak sepenuhnya menentukan identitas mereka karena para informan tetap berupaya mempertahankan kemandirian, menjalankan peran sosial, serta memiliki harapan dan rencana terhadap masa depan. Kata kunci: Komunikasi, Remaja Perempuan, Systemic Lupus Erythematosus, Identitas Diri, ODAPUS. This study examines the communication experiences of adolescent girls with systemic lupus erythematosus (SLE) in Surabaya as they make sense of their self-identity following a diagnosis of a chronic autoimmune disease that affects their physical, psychological, and social well-being. The study employs a qualitative approach using Alfred Schutz’s social phenomenology to deeply understand the informants’ life experiences, while data analysis is conducted using George Herbert Mead’s theory of symbolic interactionism through the concepts of mind, self, and society. The study’s informants consist of two women with SLE, aged 21 and 22, residing in Surabaya, with data collected through in-depth interviews, observation, and documentation. The results of the study indicate that a lupus diagnosis alters how the informants perceive themselves, their bodies, their daily activities, and their future. Physical conditions such as easy fatigue, limitations regarding sun exposure, the treatment regimens they must follow, and the possibility of flare-ups necessitate various adjustments in their daily lives. In this process, support from family, friends, and close associates plays a crucial role in fostering self-acceptance and the development of a more positive sense of identity. Conversely, comments about physical changes, stigma resulting from the public’s lack of understanding of lupus, and treatment that overly restricts their activities often cause feelings of discomfort and lower self-confidence. Informants also tended to disclose their health condition selectively based on the closeness of the relationship and the communication needs at hand. This study concludes that the self-identity of women with lupus is formed through a process of self-reflection and social interaction that unfolds dynamically and gradually, in which lupus becomes part of their life experience that shapes how they perceive themselves, yet does not entirely define their identity, as the informants continue to strive to maintain their independence, fulfill social roles, and hold hopes and plans for the future. Keywords: Communication, Adolescent Girls, Systemic Lupus Erythematosus, Self-Identity, ODAPUS.
| Item Type: | Thesis (Undergraduate) |
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| Uncontrolled Keywords: | Kata kunci: Komunikasi, Remaja Perempuan, Systemic Lupus Erythematosus, Identitas Diri, ODAPUS. |
| Subjects: | H Social Sciences > H Social Sciences (General) |
| Divisions: | Fakultas Ilmu Sosial dan Ilmu Politik > Program Studi Ilmu Komunikasi |
| Depositing User: | 1152200367 Malinda Intani |
| Date Deposited: | 11 Sep 2026 02:28 |
| Last Modified: | 11 Sep 2026 02:28 |
| URI: | http://repository.untag-sby.ac.id/id/eprint/47095 |
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